Living With MOGAD Can Feel Overwhelming
You don't have to figure it all out alone.
Book a free 45-minute conversation to talk through your situation, explore what's been most challenging lately, and identify practical next steps that may help.
Hi, I'm Scott.
I created MyMyelitis after navigating MOGAD myself and experiencing how isolating, uncertain, and confusing life with a rare condition can feel.
Over the last few years I've spoken with people across the MOGAD community about some of the challenges that rarely get discussed:
- Symptom uncertainty
- Relapses and treatment decisions
- Identity changes
- Rebuilding life after diagnosis
While I can't provide medical advice, I can offer something that's often hard to find:
A calm, understanding conversation with someone who has lived through many of the same challenges.
This Call May Be Helpful If...
If any of these sound familiar, this conversation may be helpful.
You keep finding yourself asking:
"Is this a relapse?"
You're feeling overwhelmed by symptoms or uncertainty
You don't feel like yourself anymore
You feel isolated or misunderstood
You're struggling to adjust to life after diagnosis
You want to talk things through with someone who understands the lived experience of MOGAD
What Happens During The Call?
The conversation is guided by what's most important to you. Depending on where you are in your journey, conversations often include:
Symptom uncertainty
Fatigue and daily challenges
Emotional impact of MOGAD
Healthcare frustrations
Rebuilding confidence and getting back into life
Identifying practical next steps
You don't need to have the right questions or all the answers. We simply start with what's most important to you right now.
What This Conversation Is (And Isn't)
This conversation is not:
A supportive conversation
A replacement for your healthcare team
Emergency or crisis support
A high-pressure sales call
What you can expect:
A supportive conversation
A chance to feel heard
Practical guidance and perspective
Space to explore what's been challenging
Support from someone who has lived through many of the same challenges
If you're unsure whether this conversation would be helpful, you're welcome to book a call and we'll simply see if it's the right fit.
What People Tell Me After Our Conversations
Talking with someone who understands can make a huge difference.
❝
My sessions with Scott have calmed my anxiety and provided deep knowledge about MOGAD.
Scott has a profound interest in helping people find a positive path forward and shares his own experience with honesty and compassion.
The coping techniques and practical insights he has shared have made my MOGAD journey easier.
I am grateful for his guidance and support.
Hal C.
Living with MOGAD • USA
Book A Free 45-Minute Conversation
Simply choose a time below. We'll start wherever you are and focus on what's most important to you.
What Happens Next?
- Book a time that works for you
- You'll receive a confirmation email with the meeting link
- We'll have a relaxed 45-minute conversation about your situation
- If another resource could be useful, I'll happily point you in the right direction.
Not sure if this conversation is right for you? Feel free to book anyway. If I don't think I'm the right person to help, I'll do my best to point you toward a useful resource or organisation.
Still Have Questions?
Yes.
These conversations are completely free.
They help me better understand the challenges people in the MOGAD community are facing so I can create more useful resources, content, and support in the future.
No.
My priority is helping you leave with greater clarity and understanding.
If I believe another resource could be helpful, I'll mention it. But this is not a high pressure sales call.
No.
I'm not a medical professional and can't provide medical advice, diagnosis, or treatment recommendations.
Any medical concerns should always be discussed with your healthcare team.
What I can offer is lived experience, practical perspective, and emotional support.
That's absolutely fine.
If you're currently being investigated for MOGAD, awaiting a diagnosis, or living with a related neuroimmune condition, you may still find the conversation helpful.
If you're unsure whether the call is right for you, feel free to book and we'll figure it out together.
That's completely normal.
You don't need to prepare anything beforehand.
We'll simply start with what's been most challenging or most important for you recently and take it from there.
Yes.
Our conversation will remain private and won't be shared with anyone else without your permission.
No problem.
Your confirmation email will contain links allowing you to reschedule or cancel if your plans change.
Ready To Talk?
If any part of this page resonated with you, you're welcome to book a free conversation.
We'll start wherever you are and focus on what's most important to you.