by Scott

July 27, 2020

Transverse Myelitis Recovery Diary

When diagnosed with a neurological condition such as Transverse Myelitis, keeping a record of your recovery is probably the last thing on your mind. But recording your recovery journey can be helpful in many ways.

Recording Your Recovery Helps You Track Your Progress:

Recording your recovery progress allows you to see progress which has happened over a long period of time. Recovery of the nerves and myelin takes much longer than a recovery from muscle or joint injuries.

Unless you have a very good memory it can be hard to remember all of the symptoms, experiences and improvements which have shown over the course of your recovery. Keeping a record can help you make sure you do not forget anything.

Tracking can also help identify when your treatments and activities are not benefiting your recovery.

Recording Your Recovery Helps You Take Ownership of Your Condition:

Taking ownership over your TM can be helpful due to your own experience of the condition likely being unique.

Being diagnosed with TM can be draining so keeping a record can help you express those feelings and motivate you to own your condition.

Recording Your Recovery Helps You Identify Areas for Improvement:

Recording your progress could highlight areas for improvement in your recovery.

After I had my catheter removed I recorded that going to the toilet was still difficult. One thing I had noticed in my record was that I was not drinking enough water. I decided to start tracking my fluid intake carefully, which motivated me to drink the recommended 2/3 litres of water each day. As a result, I noticed that urination became much easier for me.

Recording Your Recovery Could Highlight Areas for Future Research:

Tracking your recovery process can allow researchers who are studying the condition to highlight potential areas for future research.

Recording our progress and sharing what we find could mean that better recovery processes to reduce the symptoms can be found. Whilst our symptoms may be different there may be similarities as to their treatment and tracking this is a good way to find possible solutions.

Transverse Myelitis Effects Everyone Differently:

Lastly, TM effects everyone in different ways, usually due to where on the spinal cord the nerve damage has happened and the treatment given. Your TM experience is probably different from someone else who also has it.

Recording your own experience is the best way of keeping track of how the condition has affected you over time. You can use your record to show both family, friends and others involved in your recovery your experience.

Lets recap, why should you record your Transverse Myelitis recovery?

  • Repair of nerves and improvement in your condition can take years to happen so keep a record to help track your recovery.
  • Recording your own recovery journey allows you to take ownership of your recovery from the condition.
  • Recording your progress could highlight areas to improve your recovery.
  • Having a record of your recovery can allow researchers to pinpoint areas to improve the recovery in future.
  • TM affects us differently so keep your own record to track progress and make changes when necessary.

The next blog post will discuss how you can go about recording your recovery from Transverse Myelitis. Follow our Blog to find out when new posts like this one are made.

About the author


Scott was diagnosed with Transverse Myelitis (TM) in March 2020 caused by MOG Antibody Disease (MOGAD). He founded MyMyelitis in July 2020 to raise awareness of TM, MOGAD and similar neurological conditions to help others with their recovery.

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