MyMyelitis https://mymyelitis.com/ Mon, 27 Mar 2023 19:13:07 +0000 en-GB hourly 1 https://wordpress.org/?v=7.0 https://mymyelitis.com/wp-content/uploads/2020/10/MyMyelitis-Icon-PNG.png MyMyelitis https://mymyelitis.com/ 32 32 177880946 MOG Antibody Disease (MOGAD) Relapses https://mymyelitis.com/mog-antibody-disease/mogad-relapses/ Wed, 22 Feb 2023 16:30:59 +0000 https://mymyelitis.com/?p=2109 MOG Antibody Disease (MOGAD) relapses are one of a patient's biggest challenges. In this blog post, you will learn what a relapse is, how to spot one, and what you need to do in the event of a relapse. Firstly, I would like to thank Dr. Elias Sotirchos and The MOG Project for reviewing this blog […]

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]]> 2109 Satralizumab (Meteroid) Clinical Trial  https://mymyelitis.com/mog-antibody-disease/satralizumab-meteroid-clinical-trial/ Mon, 30 Jan 2023 13:58:35 +0000 https://mymyelitis.com/?p=2072 The hunt for the first-ever approved treatment for MOG Antibody Disease continues with another phase 3 clinical trial involving satralizumab. satralizumab will be tested on MOGAD patients to see if it reduces relapses and whether it is suitable as a preventative treatment. Firstly, I would like to thank Dr. Cristina Valencia-Sanchez and The MOG Project for […]

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]]> 2072 Grief with MOG Antibody Disease https://mymyelitis.com/mog-antibody-disease/grief-with-mog-antibody-disease/ Mon, 23 Jan 2023 19:27:41 +0000 https://mymyelitis.com/?p=2038 A diagnosis of MOG Antibody Disease (MOGAD) can be overwhelming and trigger grief. Grief is a strong, often overwhelming emotion involving loss. It does not only apply to death; it can apply to any form of loss, including the loss of ability or the sense of normality for a person. A MOG Antibody Disease diagnosis can […]

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]]> 2038 Fatigue in MOG Antibody Disease Research – MSJ Publication https://mymyelitis.com/mog-antibody-disease/fatigue-in-mog-antibody-disease-research-multiple-sclerosis-journal-publication/ Mon, 21 Nov 2022 21:17:45 +0000 https://mymyelitis.com/?p=1870 Last week we were featured in our first-ever MOG Antibody Disease research article! The results of the Ignition Survey #2 Fatigue in MOG Antibody Disease contributed to the research article 'Fatigue is a common symptom in MOG antibody disease.'This article was presented at ECTRIMS in Amsterdam on the 26th of October 2022 by Dr. Ladakis […]

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]]> 1870 Fatigue in MOGAD – Ignition Survey #2 Results https://mymyelitis.com/mog-antibody-disease/fatigue-in-mogad/ Mon, 10 Oct 2022 12:25:35 +0000 https://mymyelitis.com/?p=1758 In collaboration with The MOG Project, MyMyelitis created the Ignition Survey 2 to explore fatigue in MOG Antibody Disease (MOGAD) within the community. Below are the complete findings of the survey. Table Of Contents What was the Goal of the Survey?Demographics of Survey RespondentsDiagnosis of RespondentsOther Diagnosis of RespondentsMOGAD Presentations of Respondents Signs and Symptoms of RespondentsTreatments of […]

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]]> 1758 Rozanolixizumab – A New Treatment for MOG Antibody Disease? https://mymyelitis.com/mog-antibody-disease/rozanolixizumab-mogad-trial/ Mon, 03 Oct 2022 13:54:03 +0000 https://mymyelitis.com/?p=1725 Table Of Contents What is Rozanolixizumab?How does Rozanolixizumab work?What is the clinical trial doing, and how does it work?Clinical Trail InformationWho can take part in the clinical trial?What are the Exclusion Criteria?Where is the clinical trial taking place? What happens if a patient relapses in the trial?How long will the trial last?Where can I sign up […]

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